We may use your personal information to: respond to enquiries; provide access to membership content; manage memberships, subscriptions and payments; send welcome emails, updates or membership information; send newsletters or marketing emails where you have signed up or where the law allows; provide links or access details for online groups, events, Zoom calls or community spaces; understand how people use the website; improve our resources, content and services; manage safety, safeguarding or behaviour concerns in group/community spaces; keep appropriate records; comply with legal, tax, accounting and regulatory obligations; protect our rights, content, website, members and community.

Lived Experience Collective – Privacy and Contributions

The Lived Experience Collective provides a space for neurodivergent adults to share their personal experiences, perspectives and stories.

What information we collect

When you submit a story or express interest in contributing, we may collect:

• Your name or preferred pseudonym

• Your email address

• Your written contribution or story idea

• Any personal experiences or information you choose to share

• Your preferences regarding anonymity and publication

How we use your information

We use this information to review submissions, communicate with contributors, edit and prepare approved articles, and publish contributions where permission has been given.

Some stories may contain sensitive personal information, including experiences relating to neurodivergence, disability or mental health. We will seek your explicit consent to use and publish this information where required.

Publication and consent

We will not publish your contribution without your approval and a completed Publication Agreement.

You can choose to be credited by name, use a pseudonym or remain anonymous. However, anonymity cannot always be guaranteed where personal experiences may make someone identifiable.

Contributors can withdraw their submission before publication. After publication, removal requests will be considered wherever reasonably possible, although we cannot guarantee removal of content already shared or copied by others.

Storage and confidentiality

Submissions and contact information will only be accessible to authorised members of our team and relevant service providers. Unsuccessful submissions will normally be deleted within six months of a decision, unless there is a valid reason to retain them. Published contributions and associated permissions will be retained for as long as reasonably necessary for publication and record-keeping.

Information submitted to the Collective will not automatically be used for marketing purposes.

For privacy questions or requests relating to your information, please contact hello@audhdandthensome.com.

Online Support Groups and Community Spaces

When you register for or attend our online support groups, events or community spaces, we may collect your name, email address, booking information and any accessibility or support needs you choose to share.

We use this information to manage bookings, provide joining instructions, support accessibility and maintain a safe and welcoming environment.

Support group discussions are confidential in expectation, but we cannot guarantee that other participants will keep information private. We ask everyone to respect the privacy of others.

Sessions will not be recorded by us without informing participants and obtaining any necessary consent.

We will not automatically add you to marketing communications simply because you attend a support group.

Contact Forms and Enquiries

When you complete a form on our website, we collect the information you choose to provide, such as your name, email address and enquiry details.

This may include membership enquiries, support group registrations, event bookings, feedback and Lived Experience Collective submissions.

We use this information to respond to your enquiry, manage your request and provide relevant information about the service you have contacted us about.

Your information is stored using our website and associated service providers and is only accessed by authorised individuals.

We do not use information submitted through these forms for unrelated marketing unless you have separately agreed to receive it.

for using your data Under UK GDPR, we must have a lawful basis for using personal information. The ICO explains that organisations must include their lawful basis in their privacy information.

We may rely on the following lawful bases: Contract We use this when we need your information to provide something you have requested or purchased, such as membership access, digital resources, support group access, or customer support.

Consent We use this where you have clearly agreed, such as when you sign up to a mailing list, agree to receive marketing emails, or choose to share sensitive information. You can withdraw consent at any time by contacting us or using the unsubscribe link in an email.

Legitimate interests We may use your information where it is reasonably necessary for running and improving AuDHD and Then Some, provided your rights and interests do not override this. For example: responding to enquiries; improving services; keeping basic records; protecting our content; preventing misuse of the website or membership; understanding website performance.  

Legal obligation We may use or keep information where we need to comply with the law, such as tax, accounting, record-keeping, legal claims, or regulatory requirements.

Vital interests In rare cases, we may use or share information if we believe it is necessary to protect someone’s life or immediate safety.  

If you sign up to receive newsletters, updates or marketing emails, we will use your email address to send those communications. You can unsubscribe at any time by clicking the unsubscribe link in the email or by contacting: audhdandthensome@gmail.com We will not sell your email address to third parties.